{"id":6867,"date":"2016-11-01T17:00:00","date_gmt":"2016-11-01T21:00:00","guid":{"rendered":""},"modified":"2020-09-12T16:00:21","modified_gmt":"2020-09-12T20:00:21","slug":"so-your-character-has-fibromyalgia","status":"publish","type":"post","link":"https:\/\/victoriagracehowell.com\/staging\/6258\/so-your-character-has-fibromyalgia\/","title":{"rendered":"So Your Character Has Fibromyalgia … Featuring Sky @ Further Up and Further In"},"content":{"rendered":"
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\nWhen I was younger, I’d seen commercials about fibromyalgia. It wasn’t until I found out someone close to me had it that I started looking into it a bit more. Furthermore, my character Elasa<\/a> also has this condition. For those of your who don’t know according to Wikipedia, fibromyalgia is “<\/span>is a medical condition characterised by chronic widespread pain and a heightened pain response to pressure. Other symptoms include feeling tired to a degree that normal activities are affected, sleep problems, and troubles with memory. Some people also report restless legs syndrome, bowel or bladder problems, numbness and tingling, and sensitivity to noise, lights or temperature. Fibromyalgia is frequently associated with depression, anxiety, and posttraumatic stress disorder. Other types of chronic pain are also frequently present.”<\/span><\/span><\/div>\n
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So Your Character Is … is an on going series where I interview or talk about myself about different people groups, countries, etc. for writing more accurate characters. Sky Destrian from Further Up and Further In has fibromyalgia and is gracious enough to let me interview her for both the blog and my own personal character research.<\/span>
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<\/span>Please welcome Sky!<\/span><\/span>
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\n(Images aren’t mine) <\/span>
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Sky is a 20-year-old writer and graphic designer from Colorado. In addition to creative pursuits, Sky enjoys consuming stories in any form, especially TV shows. Her favorite stories usually involve superheroes and light triumphing over darkness. Both of these themes have encouraged her in the midst of her struggles with fibromyalgia, PCOS, and anxiety. If you need her, she can most likely be found coming up with her next plot twist, searching for a way to make fictional characters real, or attempting to attain Tony Stark-like wit.<\/span><\/span><\/p>\n

\nBlog<\/a>\/\/Facebook<\/a>\/\/Twitter<\/a><\/span><\/div>\n
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\nHow does your fibromyalgia physically feel? How do you think it compares to those who don\u2019t have this?<\/b><\/span>
\nEveryone\u2019s fibromyalgia is different, but my fibromyalgia manifests in two things: fatigue and pain. The fatigue is pretty relentless, and it can be unwarranted–while it usually flares because I did something \u201cbig,\u201d like attending an event, sometimes I can feel tired for no reason at all. The same goes for the pain. I have various types of pain–muscle pain, joint pain, and random, shooting nerve pain that I can only describe as \u201cprickly.\u201d The pain can be triggered by weather (an incoming storm or a low in barometric pressure especially) or physical exertion, but sometimes it\u2019s random. (For example, right now my left thumb really hurts every time I hit the space bar for no reason.)<\/span>
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\nIn addition to fibromyalgia, I have chronic migraines, though it\u2019s hard to tell if those are because of fibromyalgia or a separate thing. I also have PCOS, so they all just play into each other.<\/span>
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\nI think having fibromyalgia differs from people who are healthy because a lot of people don\u2019t have pain or fatigue on a daily basis. A lot of people do experience those things, and I don\u2019t want to discredit that. However, my pain and fatigue are sometimes more amplified than other people\u2019s. For example, it\u2019s rare that I\u2019m not hurting somewhere, and even five minutes of physical exertion can wear me out.<\/span>
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\nHow do you feel about your fibromyalgia?<\/b><\/span>
\nIt\u2019s frustrating, but at the same time, I\u2019ve had to learn to live with it. It takes a lot of energy to get upset about fibromyalgia–energy I don\u2019t have. I\u2019m not sure if I\u2019ve accepted my fibromyalgia or if I\u2019m just apathetic about it. It\u2019s just become part of my daily life, and I haven\u2019t ever really known what a \u201chealthy\u201d body is supposed to feel like. I know that seems kind of depressing, but it just means that this is my normal. I haven\u2019t known any differently. It\u2019s just my life.<\/span>
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\nThat doesn\u2019t mean I don\u2019t get mad though–I do. Sometimes I grieve all the things I don\u2019t think I will get to experience and all the things I feel that I\u2019ve lost. It really depends on the day. But for the most part, fibromyalgia and I somehow manage to coexist (not really peacefully, since it\u2019s not exactly nice to me, but I\u2019ll take what I can get).<\/span>
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\nWhat challenges does your fibromyalgia pose?<\/b><\/span>
\nQuite a few, and I\u2019m not even sure where to begin. It was really difficult for me to finish school, and I have to limit how much I do certain activities such as work or social outings. It\u2019s difficult to find a job that\u2019s part-time enough and won\u2019t aggravate my physical health. I haven\u2019t been able to have a lot of \u201cnormal\u201d experiences, like working, going to college, or even getting my driver\u2019s license (though I\u2019m working on the last one). <\/span>
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\nThe reason for this is that I have limited amounts of energy, and if I do \u201ctoo much,\u201d I will flare badly for the next few days with both pain and fatigue–sometimes it will be hard for me to get out of bed. Any physical activity (going up the stairs, walking more than five feet, dancing, etc.) is extremely difficult because of the pain and exhaustion it causes. I can do those things, but I have to power through the pain to do them. Then I have to pay the price later with pain, body aches, and exhaustion. In addition to all that, there\u2019s other random symptoms, like insomnia, anxiety, depression, and mood swings. <\/span>
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\nIs there anything you like about your fibromyalgia?<\/b><\/span>
\nI really feel that fibromyalgia has made me who I am. Without it, I would probably be a different person. Because I couldn\u2019t go out and socialize much when I was younger, I spent much of my time indoors: reading, writing, and blogging. I lived vicariously through writing my novels (and I still do). <\/span>
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\nIf I didn\u2019t have fibromyalgia, I don\u2019t know if I\u2019d be as good a writer or even be a writer at all. I probably wouldn\u2019t have read all the books I have or watched all the shows I\u2019ve watched, and I wouldn\u2019t be in love with approximately 4,607 fictional characters. I genuinely feel like I would be missing a lot if I didn\u2019t have fibromyalgia. <\/span>
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\nI already am missing a lot in the outside world, but instead, I made my own world, my own reality. A reality filled with daydreams, music, stories I love, my family, friends, and every possible positive experience I can find even amidst the pain. I don\u2019t see the world the same way as other people. But my world is rich, it\u2019s beautiful, it\u2019s mine. And I\u2019m okay with that.<\/span>
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\nDo you think your day differs from others because of your fibromyalgia?<\/b><\/span>
\nYes, definitely, because I have a limited amount of energy and ability to get things done. I often have to lay down or sit down in the middle of tasks more than other people, and sometimes I can\u2019t do things at all. My day requires a bit more consideration–I can\u2019t just do things without considering whether I feel up to it or not. I have to carefully think about whether I\u2019m able to participate in social activities or errands–if I don\u2019t have the energy for it and I know it will flare me, I can\u2019t do it. <\/span>
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\nThis can even extend to simple things like getting ready for the day–for example, often I don\u2019t wear make up because I need to conserve my energy for other tasks I have to do later. One helpful analogy is the spoon theory. You can read it here<\/a>. I have to measure out my spoons for the day, so that\u2019s the biggest way my day differs from others. <\/span>
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\nDo you have any cultural differences between others who also have your fibromyalgia and those who do not?<\/b><\/span>
\nYes. It\u2019s very hard to relate to people sometimes because it can feel like I\u2019m different from them. For example, people my age usually have jobs and cars, whereas I\u2019m just trying to remember to take my meds on time (I usually don\u2019t remember; phone reminders and timers are often involved). There\u2019s a bit of a dissonance between myself and what is considered \u201cnormal,\u201d and that can make it hard to get to know people and relate to them. <\/span>
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\nA lot of people actually don\u2019t understand fibromyalgia or what it\u2019s like, and they can\u2019t quite wrap their minds around it. Often it\u2019s something I don\u2019t even bring up unless prompted because there are so few people who understand. It\u2019s rare for me to find people who do, but I hold tightly onto those amazing people when I find them. A lot of my friendships are online. I have found so many amazing people, even though they live thousands of miles away.<\/span>
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\nWhat are some stereotypes about your fibromyalgia that irk you?<\/b><\/span>
\nWell… how much time do you have? \ud83d\ude09<\/span>
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\n\u201cBut you don\u2019t look sick\u201d is my favorite one. People tend to think that if you look healthy, you are healthy, which just isn\u2019t the case. I often put on a very good face for people–I\u2019ve learned to fake it. Even when I\u2019m feeling terrible, I can still be smiling and acting like everything\u2019s fine. I honestly don\u2019t know why I do this, but it\u2019s something I learned to do really early on. So of course, people don\u2019t think I look sick, which I do understand. I don\u2019t look sick. But there\u2019s more to me than meets the eye.<\/span>
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\nThe other things that irk me are people who assume I\u2019m lazy, that I\u2019m just doing this for attention, or that it\u2019s all in my head. <\/span>
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\nWhat media portrays your fibromyalgia badly be it a movie, a book, or a TV show?<\/b><\/span>
\nHonestly… I have never, ever seen a character with fibromyalgia. And that is something I would really love to change. Chronic illnesses are extremely underrepresented, and it would make me feel so happy to see a character with my actual same diagnosis.<\/span>
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\nHowever, because of my fibromyalgia, I am disabled, and I can speak to that. While I can\u2019t think of any specific examples, one of the things I hate the most is when a character with a disability is magically cured. Life doesn\u2019t usually work like that. I might just be bitter, but it\u2019s hard for me when people with disabilities get healed and don\u2019t have to deal with their disabilities anymore. It\u2019s just not realistic. I also would like more media where disabilities were not portrayed as something to just \u201cget over\u201d but as a normal part of the character\u2019s life.<\/span>
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\nWhat media portrays your fibromyalgia well be it a movie, a book, or a TV show?<\/b><\/span>
\nThough I\u2019ve never seen a character with fibromyalgia, I do have the overarching issue of pain. I haven\u2019t seen much of House<\/i>, but from what I have seen, I relate to the main character a lot. Mostly because I totally get the instinct of being grumpy and surly when you\u2019re in pain. <\/span>
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\nWhile I try to keep it positive, pain is just annoying, and it can make you feel like being rude to everyone around you (unfortunately!). I feel that House <\/i>portrays that well and realistically, even though it\u2019s definitely not the most positive attitude to have.<\/span>
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\nWho are your top three favorite characters who also have fibromyalgia in books, movies, or shows?<\/b><\/span>
\nOne of the greatest portrayals of chronic pain I\u2019ve ever seen is Sophie from the book Far From You<\/i> by Tess Sharpe. Sophie had been in a car accident which caused permanent pain, and I related so much to her. The book was written with a lot of vulnerability and accuracy, and it made me feel very understood–Sophie had pain when getting off the ground, for example. Sophie and I weren\u2019t exactly the same physically, but it was so refreshing to read someone like me–someone who has pain while trying to move around, someone who just has pain woven into their narrative like I do.<\/span>
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\nOther than that, I don\u2019t have any favorite characters with fibromyalgia. But I\u2019ll be looking for them.<\/span>
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\nThank you again, Sky! This is such a wealth of information! Thanks for reading!<\/span><\/div>\n
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Are you interested in participating in this project? Shoot me an email at howellvictoriagrace(a)gmail.com.<\/span><\/span>
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\nDo you have any characters with fibromyalgia? Did this inspire you to write a character with fibromyalgia? Do you have fibromyalgia and you have further input? Feel free to share! Do you have any questions for Sky? Be sure to thank her!<\/span><\/b><\/span><\/div>\n
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When I was younger, I’d seen commercials about fibromyalgia. It wasn’t until I found out someone close to me had it that I started looking into it a bit more. Furthermore, my character Elasa also has this condition. For those of your who don’t know according to Wikipedia, fibromyalgia is “is a medical condition characterised …<\/p>\n

So Your Character Has Fibromyalgia … Featuring Sky @ Further Up and Further In<\/span> Read More »<\/a><\/p>\n","protected":false},"author":5,"featured_media":6868,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"nf_dc_page":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[56,54],"class_list":["post-6867","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-guest-post","tag-writing-tips"],"yoast_head":"\nSo Your Character Has Fibromyalgia ... 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